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National Hemophilia Foundation 
Joins CHC-NE

Community Health Charities of Nebraska (CHC-NE) is pleased to announce that the National Hemophilia Foundation, Nebraska Chapter is the newest member charity to join the organization, bringing to 18 the number of Nebraska-based health charities in the statewide fundraising federation.

“Our association with this exemplary agency will be a great partnership in health,” said Clarence Nichols, State Board Chairman. “The CHC-NE Board of Directors is very pleased to extend membership in our organization of premier health charities, offering the combined power of efficient fundraising and educational programs.”

The National Hemophilia Foundation (founded in 1948) represents the 20,000 people in the United States with a genetic bleeding disorder. There is currently no cure for hemophilia. While there are effective treatments available in the U.S., it may require lifelong infusion of “high-cost” drug products. The National Hemophilia Foundation, Nebraska Chapter – which opened its doors in 1985 – is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

“We are so honored to become members of Community Health Charities of Nebraska. CHC-NE is a leader and innovator in raising awareness and critical funds for those living in Nebraska with a chronic illness. We are proud to be a part of it and look forward to raising much needed awareness for families living with bleeding disorders in Nebraska,” said Kristi Harvey-Simi, Executive Director of the National Hemophilia Foundation, Nebraska Chapter.

CHC-NE is Part of EveryMove

CHC-NE is excited to announce that we are participating in Blue Cross Blue Shield of Nebraska's EveryMove charity program. EveryMove promotes and rewards healthy lifestyles. When members of Blue Cross Blue Shield sign up for EveryMove, they automatically start earning rewards points for working out. Walking, running and biking are among the hundreds of activities that will earn points towards a donation charity reward. One of those rewards will be a donation to Community Health Charities of Nebraska. 

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At the age of 10, Taylor Harbin was diligently working toward a three year goal of Black Belt in Tae Kwon Do. He began complaining of aches and pains in his joints which his parents attributed to the many hours of practice. As time progressed, he began to refuse his little brother’s request to go outside and play. Eventually the pain progressed until he could not get out of bed by himself.


 


 
 
 

 

 

 

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